• 13thirty Threads: Do Your Life

    Do Your Life  – Vicki Ties It Together

    13thirty member, Jeremy (Hodgkin’s lymphoma) offers his advice to newly diagnosed teens and young adults.


    Looking back, there were many times during my cancer adventure when I couldn’t visualize a future. Not because I lived in fear, but because I lived and loved in the moment. I realized that on any given day the course of my life could be changed in an instant. 

    I began to look at my life and the world in front of me through a different lens, one that provided me clarity and purpose like nothing I had ever experienced. I realized that I want to be the person who remembers your birthday and goes all out to make it special. The one who gives her time freely and shares her gifts with the world. The person who always does her best despite how she feels. The one who loves purely, with her entire heart, without judgment or barriers. 

    As Jeremy said in his video, “You only regret the things in life you don’t do. So, give everything a shot.”  I have to say, he was spot on! 

    Do your life.

    Not the life to make someone else happy, not the life someone wishes for you, not the life someone expects of you. 

    Do your life. 

    Do it big, do it messy, do it bold, do it wrong, do it with humility, do it with grace.

    Do your life.

    Do it sideways and backwards, do it multi-colored, do it loud, do it quiet, do it epic, do it brave!

    Do your life. 

    The one you dream, imagine, hope for, the one you want with every fiber of your being. The one that brings you peace, makes you love better, laugh harder. Do the life you deserve!

    Own your life! 

    Until next time my dear friends. 

    Peace, love, and light.

    Be well,
    Vicki


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  • 13thirty Threads: I am Still Here

    I am Still Here  – Vicki Ties It Together

    13thirty member, Kelly (Hodgkin’s lymphoma) reflects on how her relationships changed after her diagnosis.


    From the moment you learn you have cancer, your life changes and so do the relationships surrounding you. There will be those that rally around you cheering you on, offering their kindness, and showing their support. Unfortunately, there will be those that run away, hide, become distant, and eventually disappear. This happened to me. Has it happened to you?

    When this happened I wanted to shout…I am still here! I am still the same person I was before cancer. Yet, I knew I wasn’t. My perspective had changed. My priorities had changed. And as a result, my relationships changed. 

    It is difficult to lose connection with someone close to you, especially during a time when everything seems so out of control. But at the same time, you are presented with a unique opportunity to open your heart and make room for new relationships. The friendships that I built during my cancer adventure are some of the nearest and dearest I will ever know, the beautiful souls that carried me through. Yes, they know who they are. They are forever in my heart. 

    You see, it is not you causing this rewiring of your relationship network – it is the disease. You are just getting a rare glimpse into the human condition. Your family and friends are merely showing their inner selves. Who is strong? Who is optimistic? Who is scared? We all handle difficult times in different ways. My advice – continue to love the ones who have run away and show grace to the ones who have disappeared. If it is meant to be, the universe will guide them back.

    Until next time my dear friend. 

    Peace, love, and light.

    Be well,
    Vicki


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  • husband

    Opening My Heart After Cancer

    Relationships After Cancer

    I met my husband just about two years after I had finished cancer treatments. 

    I was still raw. I was terrified every day that I was relapsing. I had no idea how to have a new normal in my life, let alone know how to make a relationship a part of it.

    Cancer was something that would always be a part of who I am and whoever I met following cancer would have no idea, which meant that I was going to have to be the one to not only tell them, but to help them understand my “baggage.”

    Who doesn’t have baggage coming into a relationship? This is true; however, my baggage would affect most areas of my life including love, self-confidence, and intimacy.

    After I met my now-husband, I was scared. I was scared to talk to him; I mean really talk to him about myself. I was scared that the GVH (graft vs. host) scars would be visible to him and that I would seem ugly. The story, while comedic now, goes that he asked me to be his girlfriend for the first time and I said no.

    I really, truly liked him and loved spending time with him; however, my fears were too great. I knew that I needed to start being honest about my cancer experience. After multiple serious conversations about what I had been through, what I had seen friends go through, and what I was still dealing with, my husband asked me, again, to be his girlfriend — and this time, I said yes!

    I’d like to say that once I was in a relationship, all my doubts and fears disappeared and my self-confidence was completely restored. But this was not the case.

    Sicknesses and ailments came that now not only terrified me, but terrified the other person that I brought into the equation. I still struggled with being able to love myself again. This made it that much harder for me to allow someone else to love me. I had been so hardened by the friends I lost during cancer that I didn’t (and wouldn’t) allow myself to believe that anyone else would stay with me after cancer.

    Having relationships after cancer doesn’t just add another person to your equation, it’s adds a whole new family and another set of friends. I didn’t do any public service announcements to tell everyone about my cancer but it was something that, after time, I chose not to hide. I was open with my husband’s family and his friends. I chose to let them see the strength I had rather than the fears that seemed to overwhelm me at times. The only thing harder than telling my future husband that I could not give him a family was having to tell his parents that I was not someone who could give them grandchildren in a traditional sense. But they continued to love me just the same.

    Beating cancer was one the hardest things I’ve ever had to do, but surviving my cancer has been the bigger challenge.

    I push to survive every day now and the best part is that I have someone alongside me to do it with. Everyone may not get their “fairytale ending”, but I am so happy that I got mine. My husband is the greatest man; he is so strong and confident in all the areas I am not. He is reassuring even when he is scared. And, when I had to share with him that cancer would also affect having a future family, he took everything in stride and supported me. I have been through the ringer — but so has he.

    Supporting me in the aftermath of cancer is not easy; learning that we would not have our own biological children is a loss that we still grieve, but I have found someone who may not have been there for that chapter of my life, but who certainly understands all of those pieces of me.

    Bottom line…relationships are hard. They’re intimidating and they require work, even without adding cancer to the equation! When you find that right person, however, they will accept you for who you are, including your cancer. And they won’t mind the extra “work,” finances, and fears that come with someone who is a cancer survivor.

     


    About the Author 

    husbandPaige Strassner is one of our 13thirty participants! She graduated from Roberts Wesleyan College in 2013 with a B.S. in Nursing. She currently works at University of Rochester Medical Center in the Medical Intensive Care unit.  She enjoys spending time with family and friends, singing, and exercising.