• Parent Fit – Parents

    parent fit

    We loved bringing 13thirty Parents together for Parent Fit last month. Stay active and join us again this month with Syracuse trainer, Michelle.

  • Message Stick – AYAs

    message sticks

    Make a message stick with supplies around the house like: a stick from outside, string, pipe cleaners, spare change, paint, or beads. The list goes on!

  • 13thirty Fit! – AYAs

    13thirty Fit!

    Our Rochester trainer, Brianne, will lead 13thirty AYAs through a workout session of 13thirty Fit! Workout at home or join us from your backyard.

  • Game Night – AYAs

    Make new connections with 13thirty members at the next game night. Let’s have another night full of laughs!

  • Yoga – Families


    Join us for a relaxing guided yoga session to reduce stress. Follow along at home while our instructor helps us through different poses.

  • 13thirty programs

    13thirty Programs: Wellness, Arts, and of course, Fun!

    At 13thirty Cancer Connect, we host a variety of programs for our members and their parents. Offering regular programs helps address the unique challenges that AYA cancer can present. We try and tackle these challenges together through three program categories: wellness, arts, and social.

    Wellness
    Our wellness programs, focused on both nutrition and fitness, addresses healthier eating and getting back into shape following treatment. Last month we returned to 13thirty Fit! for both our AYAs and their parents. This month, we have a different kind of workout program; we’ll be led through a yoga class on Zoom!

    Expressive Arts
    Whether we’re painting Bandana Bolt medals, writing poetry, or practicing a performance for Journey’s, at 13thirty the work our AYAs do is incredible! Their compassion shines through as they share their stories with one another through their artwork, poetry, music, and more! This month we made Father’s Day cards to follow last month’s Mother’s Day cards.

    Social
    Getting to know other teens and young adults who understand the cancer experience is what 13thirty Cancer Connect is all about. Our Zoom game nights and happy hours are becoming hits and we will keep up the laughs and connections next month.

    Guests
    Wondering who can come to programs at the center and virtually on Zoom? 13thirty Cancer Connect programs are always free and we encourage members to bring a sibling or friend in the 13-30 age range. It may be eye opening to learn about the medical, physical, social, and emotional challenges facing our AYAs.  Keep an eye out for our monthly program calendar. You can find it on both the Rochester and Syracuse program pages, as well as on the site calendar with our other events.

  • Father’s Day Craft – AYAs

    father's day
    Let’s make a Father’s Day craft together virtually. Come prepared with a few pieces of paper and colored pencils.

  • A Great Day for the Bandana Bolt

    “The National Cancer Survivors Day Foundation defines a survivor as anyone living with a history of cancer – from the moment of diagnosis through the remainder of life.”

    This year we celebrated our 8th annual Bandana Bolt the same day as the 33rd National Cancer Survivors Day. Our hearts at 13thirty Cancer Connect were warmed by the overwhelming virtual participation in this year’s Bandana Bolt 5k run/walk. We had participation all over the country, from coast to coast celebrating cancer survivors everywhere.


    “Fun Facts” about the Bandana Bolt 5K:

    • Bandanas are often worn by AYAs in treatment, hence the name – Bandana Bolt!
    • Although held virtually, 2020 was the 8th Annual Race. 2013 was our first year and we haven’t stopped running since!
    • The Rochester race is always held at Seneca Park.
    • The first few years the race was held in the fall, the morning right after Journeys!
    • With the exception of the 2020 design, the bandana design is typically a snapshot of a piece of work from NYC based artist and one of Melissa’s brothers, Mark Sengbusch. One of her other brother’s Matthew, helps us with the graphic design.
    • Every year, our AYAs create handmade custom butterfly medals for our race winners (due to COVID-19, we missed the tradition this year!)
    • The 1st Annual Bandana Bolt 5K – Syracuse will be held on Sunday, October 4th at Green Lakes Park. Fingers crossed!

    Not only does the Bandana Bolt help 13thirty Cancer Connect support our AYAs living with cancer, it raises nationwide awareness on their behalf. There’s no “good” time to have cancer, but being an AYA living with cancer is particularly challenging. AYAs are caught in the gap between pediatric and adult medicine and have seen little improvement in survival rates compared to other groups. Being separated from their peers and dealing with a diminished self-image presents unique challenges for AYAs. Read more about how 13thirty Cancer Connect advocates for AYAs living with cancer.

    Can’t get enough of this year’s Bandana Bolt? Check out our Facebook page for more photos.

  • parent programs

    Parent Programs

    Parent Happy Hour

    At 13thirty Cancer Connect, we’ve been hosting frequent programs on Zoom for our AYAs in both Rochester and Syracuse. We finally got the chance to catch up with our 13thirty parents this month at our Parent Happy Hour program. 13thirty parents joined a Zoom call to connect with one another and catch up since quarantine went into effect.

    A note from our Founder & Executive Director, Lauren Spiker:

    Adolescence and young adulthood come with many life changes and transitions for teens and young adults – and for parents! We all hope our children will become independent, responsible adults able to manage the ups and downs of life on their own, but it’s often really hard to let go and watch the process unfold. When cancer enters the picture, everything changes and regardless of their age, taking care of our children becomes priority number one. In truth, I’ve never met a parent who wouldn’t trade places with his or her child in a heartbeat when cancer threatens. That not an option, our natural instinct kicks into high gear and we do everything humanly possible to ease the pain. We just do what parents do – give everything we have to take care of our child.

    But it’s often a lonely road we walk. Well-meaning friends help the best they can and we are grateful but they don’t know what it’s like. How could they? That’s where 13thirty Cancer Connect comes in. Just as we do for our teens and young adults, we offer parents the comfort of peers who understand. Other parents who know how it feels even when we can’t find the words to describe our fears, our hopes, our dreams. Others who know the weight of our shoes and the pain in our hearts. Though it’s a club no parent ever wants to join, new members are always welcome!

    Upcoming Parent Programs

    Our next parent program is Parent Fit on Thursday, June 11th at 6:30 PM. Our Rochester trainer, Brianne will help us get back on track with our workout routines. Come dressed to workout, inside or outside for this one hour Zoom call.

    Look out for our workout programs for both 13thirty AYAs and Parents and stay connected with our site calendar!

  • No Bake Nutrition – AYAs

    no bake nutrition

    Steve teaches us two easy no-bake tutorials for simple protein packed snacks. Buy ingredients beforehand to follow along or just watch & chat.

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